Local teen uses golf to defy deadly diagnosis

A rare metabolic disorder called CBLC left Jus Singh with severe nerve damage. After 10 grueling years of rehab, Jus recently competed in the Special Olympics Golf Masters in Macau. (CBS Austin)

Jus Singh admires many golfers, but there's a clear number one.

"The reason Jordan Spieth kind of outranks everyone in my heart is because he's seen life from a different angle because of his sister," said Jus.

It's a perspective that Jus lives daily. Like Spieth's sister Ellie, he competes in the Special Olympics, where his golf accomplishments are impressive.

But the braces that support his feet and his meticulously crafted swing tell a deeper story.

"If you asked me 10 years ago, would I see this day, I don't think so," said Meeta Kaur.

10 years ago, Jus suddenly fell ill. His parents promptly rushed him to the hospital where doctors delivered unthinkable news. "There is no activity in the brain. Diminished activity. Or in layman's terms, the brain's dead, and take him home," Meeta said.

A rare metabolic disorder called CBLC left the 6-year-old with severe nerve damage. "When he got diagnosed he was one of only 20 known cases surviving in North America," said Dr. Singh.

Without a clear 'next step', the Singh family turned to golf as Jus slowly showed signs of life.

"We would take him to the golf course in his wheelchair so that he would smile. The breeze and that wind on his face," Meeta said.

On the course, he miraculously learned to live again.

His road to Special Olympics competition started in a wheelchair with short practice sessions on the range, before evolving into 9 hole competitions with a partner, and finally to a full 18 holes with a caddie.

"When he was discharged from the hospital he was in a wheelchair wearing a diaper. If he was lying down, he couldn't roll over. So from there to see this kid go play golf it's a night and day difference," Dr. Singh said.

10 grueling years of rehab are making that difference. Jus recently competed in the Special Olympics Golf Masters in Macau, and he added to his trophy case with a gold medal. Moving forward, he wants the story behind his swing to also make a difference.

"I would like to be an inspiration for whoever would like to learn from what I've done in the past. And they can take certain aspects and use it to help them in whatever they want to achieve," Jus said

And like his favorite golfer, his journey is "Jus" beginning.

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